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Taylor Lewis – MA, CMT, CSCS, PRT

MA, CMT, CSCS, PRT

Cystic Fibrosis Fitness Institute

Cystic Fibrosis Fitness Institute

Follow CF Fitness Institute on Instgram

Advancing the approach taken in pulmonary fitness training.
#cysticfibrosis #copd #crpd #pulmonaryhypertension #pulmonaryfibrosis #exercise #fitness

We are all built with unique gifts and traits. @pulmonaryrehab_jephysios pin pointed this in her message. This is why we develop individualized exercise programs in CF. We know everyone lives differently, moves, breathes and loves life differently and we take all that into consideration.
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If you have any CF exercise related questions please do not hesitate to reach out to us. We would love to chat with you about your goals.
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#Repost @pulmonaryrehab_jephysios with @get_repost
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"The important thing is to never stop questioning"
- Albert Einstein 🔬🧪🦠
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🌎Brazil, South America
👩🏻‍🔬Miriam Figueira
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Miriam is a 31 year old CF with rare mutations originally from Rio de Janeiro, Brazil. She was diagnosed with CF at 13 years old. .
“Despite having a lot of symptoms I’m still able to keep my lung function doing good! In 2017 I graduated from my PhD in Biomedical Science and moved to US (North Carolina)to be able to keep doing CF research as a Postdoc! .
My work makes me feel as I’m in emotional roller-coaster. I feel so inspired and at the same time scared by dealing with my own disease so closely on a daily basis. Overall I still feel this pathway inspires me and was my way of dealing with difficult things and a way of empowering myself into challenging achievements!
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When you are not included in the boom of the new drugs for your CF and your disease is still progressing! Such a bittersweet emotion that I can’t barely express, but I will try to bring awareness for that so delicate situation! Very soon we will have a drug for everyone that has at least one deltaf508 mutation! That’s a mind blowing incredible achievements and will benefit around 90% of the CF patient population in the US! How about the final 10% which I’m included? A % that in a country, such as Brazil, is incredibly higher representing almost 50% of the patients that won’t be covered (according to the last Brazilian CF registry with 3.104 patients)
In addition even the ones with the right mutation will have and are already having a very variable response to the new CFTR modulators drugs. Therefore, the CF community has a big need for a personalized medicine based on each patients response

“Failure will never overtake me if my determination to succeed is strong enough”
-Og Mandino

We still have spots left! Join our online exercise group and get stronger, move better and breathe easier. It is just one click away.
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Go to our website (link in bio) and scroll down to the 2019 Impact Grant Sign Ups, click and create an account and then join the group in the top bar and you are good to go. Then download our app Pulmonary Performance Insti. to get access on your phone.
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Program Details
- Start Date: June 3rd
- End Date: September 30th (12-weeks)
- 3 Bonus exercise 🎥 per month
- Beginner to Advanced level exercise options
- Monthly Zoom Q&A
- A part of our private Facebook group
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Requirements to enroll.
- 1️⃣8️⃣ years of age or older
- Be able to participate in at least 1️⃣ workout a week and complete at least 1️⃣pre and post test.
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📸: Lindsay Henwood
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#cysticfibrosis #exercise #fitness #online #cffoundation

Congratulations @yogaforcf!
#Repost @yogaforcf with @get_repost
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Are you ready for this?! We are thrilled to announce that the @boomeresiasonfoundation has stepped up to fund ONE YEAR of additional weekly yoga classes at CF Yogi! This means we get to DOUBLE our yoga classes for the CF community -- to TWICE EVERY WEEK! 😮❕
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We could not be more thrilled to be partnering with the Boomer Esiason Foundation to help bring exercise to the CF community. We share the same mission to improve the lives of people with CF... and we all recognize that until the day a cure comes, we need to do everything in our power to improve our lung function, to keep our bodies strong so we can fight off infection, to give our minds positive tools to combat the anxiety and depression that can accompany this disease. 💪
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The people who you see pictured above are all real members of our CF community who have seen how yoga can help them with all of these things. They are the teachers here at CF Yogi who have made yoga and an active lifestyle a part of their lives... improving their health and well being.💞
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Our team of instructors, pictured clockwise from top left:
-- Heather Brown (Gentle / Kripalu Yoga)
-- Katie Malik (Flow / Fitness Yoga)
-- Chelsea Spruance (Vinyasa Flow / Yoga Nidra)
-- Myra Giaffoglione (Kids Yoga)
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Our CF community is here in our classes, learning from each other and growing closer by the day. No one person could know everything about CF... or yoga... or yoga for CF. But by joining forces and trading our knowledge about this powerful tool we've discovered in yoga -- a tool that has improved our lung function and quality of life -- we can make a difference in the lives of others.🙏
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Swipe to see who's teaching our TWO June classes! 👪
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Please join us in giving a huge THANK YOU to the team at the Boomer Esiason Foundation for making this class expansion possible!!! 🥰 And of course, to the @CF_Foundation for awarding us the #impactgrant that got this #CFyogi project off the ground! .
#CFcommunity #CFwarrior #yogaforCF #cysticfibrosis #CF #CFlife #cfirl #cysticfibrosisawarenessmonth

More Content at our YouTube Channel Cystic Fibrosis Fitness Institute

CFFI Home Base

San Rafael, CA 94901

559-381-6124

Monday-Friday 5am-5pm

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